Parents' Needs and Their Perceived Obstacles With Team Members in Perinatal Palliative Care: A Qualitative Phenomenological Study

Yasar B. N., Terzioglu F.

Journal of Hospice and Palliative Nursing, vol.24, no.6, 2022 (SCI-Expanded) identifier identifier identifier

  • Publication Type: Article / Article
  • Volume: 24 Issue: 6
  • Publication Date: 2022
  • Doi Number: 10.1097/njh.0000000000000894
  • Journal Name: Journal of Hospice and Palliative Nursing
  • Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Social Sciences Citation Index (SSCI), Scopus, Abstracts in Social Gerontology, CINAHL, EMBASE, MEDLINE, Public Affairs Index
  • Keywords: fetal anomaly, interdisciplinary team members, parental needs, perinatal palliative care, qualitative study, EXPERIENCES, PROFESSIONALS, DIAGNOSIS, DEATH, CHILD
  • Kocaeli University Affiliated: No

Abstract

© Lippincott Williams & Wilkins.Advances in prenatal diagnosis have made medical, psychological, and ethical issues regarding the diagnosis of fetal anomalies a crucial topic of research. This study identified the needs of parents of unborn babies with fetal anomalies and their views regarding the services of interdisciplinary team members in charge of assisting them. The sample consisted of 30 parents and 40 team members from a women's health education and research hospital. Data were collected through face-to-face interviews and were qualitatively analyzed using the phenomenological method of interpretation. The results showed that parents' physical, psychological, social, and spiritual needs during pregnancy, childbirth, and postpartum were not fully met after their unborn babies were diagnosed with fetal anomalies. The results also showed that team members needed a structured program, legal regulations, and training to provide holistic care.